COVID-19

Vitamin D deficiency linked to increased likelihood of developing severe or critical COVID-19.

Posted On: 16/06/2022

Earlier this year, vitamin D deficiency was linked to increased likelihood of developing severe or critical COVID-19.

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Distance Aware

Posted On: 24/02/2022

A national initiative to enable individuals and organisations to politely prompt ongoing distancing and respect of individual social space.

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Seven-year-old Pompe twins receive first dose of Covid jab

Posted On: 29/12/2021

Seven-year-old twins in the Highlands have taken a step towards ending months-long shielding after receiving their first Covid vaccinations.

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FAQs on COVID and Homecare Services from the NCHA

Posted On: 18/08/2021

The National Clinical Homecare Association (NCHA) has released a list of Frequently Asked Questions about COVID and Homecare Services.

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COVID-19 vaccination for children and young people aged 12-17 years

Posted On: 03/08/2021

It is recognised that a small number of children and young people aged 12-17 years with specific underlying health conditions may be at risk of COVID-19 and should be offered a COVID vaccine.

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COVID-19: guidance on protecting people defined on medical grounds as extremely vulnerable

Posted On: 14/07/2021

The Department of Health and Social Care has issued new guidance for the clinically extremely vulnerable in line with the Prime Minister's announcement on the easement of coronavirus restrictions.

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Vitamin D deficiency is associated with higher hospitalisation risk from COVID-19

Posted On: 14/07/2021

The latest UK study on Vitamin D deficiency concludes that it is associated with higher risk of COVID-19 hospitalisation; widespread measurement of treatment may reduce this risk.

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Parent carers added to Covid-19 vaccine priority list across the UK

Posted On: 15/02/2021

The government's vaccine committee has revised its recommendations to include unpaid carers in the vaccine priority list.

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mRNA Vaccines for COVID-19

Posted On: 07/01/2021

The American Society of Gene + Cell Therapy (ASGCT) have issued an informative video in regards to the development of the mRNA vaccine.

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Frequently asked questions about the vaccination programme for COVID-19 - Report from the British Inherited Metabolic Disease Group

Posted On: 14/12/2020

*UPDATED - 06/01/2021

The BIMDG (British Inherited Metabolic Disease Group – the professional society for doctors, nurses, dietitians, scientists and psychologists involved in the diagnosis and management of individuals with inherited metabolic disease) has prepared these responses to the frequently asked questions about

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Taking charge of your health against COVID-19

Posted On: 16/12/2020

Learn about your best defences against COVID-19 with Pulmonologist and Associate clinical Professor Roger Seheult, MD.

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Further government advice for Covid-19 shielding

Posted On: 02/12/2020

The government has updated its guidance for shielding and protecting people who are considered to be “clinically extremely vulnerable”.

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Late-Onset Pompe disease and Long Covid-19

Posted On: 26/11/2020

- A Letter from Allan Muir, Chair Pompe Support Network

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How has COVID-19 impacted people with rare diseases?

Posted On: 26/11/2020

EURODIS have released an infographic publication to illustrate how COVID-19 has impacted people with rare diseases all across Europe.

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Vitamin D and COVID-19

Posted On: 18/11/2020

- enough evidence to recommend supplements

The BMJ has reported that there are now close to 30 or so studies demonstrating that having optimal blood levels of 25(OH)-vitamin D (75-150 nmol/L) reduces covid-19 risks.

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The latest Government guidance on shielding from COVID-19

Posted On: 09/11/2020

November 2020

The latest Government Guidance on shielding and protecting people who are clinically extremely vulnerable from COVID-19.

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10 NHS tips to help if you are worried about coronavirus

Posted On: 13/07/2020

The coronavirus (COVID-19) outbreak means life has changed for us all. It may cause you to feel anxious, stressed, worried, sad, bored, lonely or frustrated.

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NHS England & NHS Improvement - Summary of the latest update on shielding

Posted On: 24/06/2020

The UK Government has set out a roadmap for the clinically extremely vulnerable on the future of the shielding programme.

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COVID-19 Statement from Sanofi - June 2020

Posted On: 18/06/2020

Sanofi-Genzyme have released the statement below to offer assurances about their commitment to the rare disease community and about the continuity of drug supplies throughout the COVID-19 crisis.

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Beacon House - Covid-19 Mental Health Support Resources

Posted On: 09/07/2020

Beacon House is a specialist, innovative and creative therapeutic service for young people, families and adults.

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Webinar

Posted On: 15/06/2020

How those affected by inherited metabolic diseases may be impacted by the COVID-19 outbreak.

The following webinar, the second in the series, focuses on how those affected by inherited metabolic diseases may be impacted by the coronavirus (COVID-19) outbreak. The webinar was organised by patient organisations working in the field of Inherited Metabolic Diseases (IMD) with the aim of address

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The latest Government Guidance on shielding from COVID-19

Posted On: 08/06/2020

The government has updated its guidance for people who are shielding taking into account that COVID-19 disease levels have decreased over the last few weeks.

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Excitement in the Forest of Wonders

Posted On: 07/05/2020

A children's picture book explaining measures to halt the spread of COVID-19 has been published online by Björn Enno Hermans.

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Vitamin D protection from the effects of COVID-19

Posted On: 07/05/2020

A very recent study of 10,933 people from 25 trials conducted in 15 countries has shown how important Vitamin D is in protecting us from Acute Respiratory Infections (ARI), such as those resulting from seasonal flu and coronavirus infections.

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