The COVID-19 pandemic has exacerbated the many challenges that people living with a rare disease face.
During the first wave of COVID-19 in Europe, access to the care and treatment that patients rely on was disrupted, and the stress and anxiety of daily life heightened. The pandemic has also changed the relationship of people living with a rare disease with the healthcare system, opening doors to more digital health options.
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About EURODIS:
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 944 rare disease patient organisations in 73 countries, and the voice of 30 million people affected by rare diseases throughout Europe.