A meeting of the All-Party Parliamentary Group to discuss newborn screening in the UK

A meeting of the All-Party Parliamentary Group to discuss newborn screening in the UK

Posted On: 25/06/2021 Recently Posted!

On 9th June a meeting of the All-Party Parliamentary Group (APPG) on Rare, Genetic and Undiagnosed Conditions met to discuss newborn screening in the UK.

Several members of the LSD collaborative gave moving accounts of life with a rare condition and the desperate need for earlier diagnosis. Georgina Morton of the Archangel MLD Trust has been making great strides in gaining parliamentarians attention of the need for more conditions to be added to the UK newborn screening panel. We are working with Georgina and the LSD Collaborative in this campaign.


The recording of the meeting (see below) is worth watching alone for the passion and frustration expressed in the talk by Prof Simon Heales, we highly recommend it!