The Neuromuscular Centre will be hosting a summer gathering on Saturday 22nd July 2023 which is open to families and charities affected by neuromuscular conditions.
The event will be a fantastic opportunity for families, charities and support groups to get together and exchange information and experiences, a social and fun day but with a chance to gain new knowledge.
The theme will be based around housing, homes and happiness, and looking at independent living with Laura Fisher, head of Housing, Resettlement and Independent Living for Shropshire as keynote speaker. There will be a video presentation from David Abbey and ForHousing's Sean Myerscough (Home Improvement Agency Manager) will be a roving expert. It's sure to be a fantastic day for everyone!
Meeting Agenda:
Sean Myerscough, Home Improvement Agency Manager of For Housing, will be available all day as a roving expert.
- 10am Welcome from our CEO Matthew Lanham.
- Time for networking and viewing stands.
- 11am Laura Fisher, Head of Housing, Resettlement, and Independent Living for Shropshire.
- There'll be plenty of time for questions and discussion.
- 12 Noon lunch BBQ
- Provided by our very own Head of Physio and one of the team.
- We'll be providing a veggie option and a gluten free option.
- If you haven't done so already, please provide your dietary requirements.
- 1.15pm David Abbey presenting the HOLD (Home Ownership for Long-term Disabled) scheme
- Keith Jones, who has Pompe has used the HOLD scheme, will be on hand to talk about his lived experience.
- with plenty of opportunities after to ask questions.
- 2pm Panel discussion and Q&A
- Private rental, social housing and housing lists, adaptations, the disabled facilities grant, the decision to rent or buy, whether to install a lift or move....and more!
- 3.30pm Finish
- You're very welcome to stay for a drink and chat.
Please contact us to let us know if you wish to attend - hello@pompe.uk