International Pompe Day (IPD)

International Pompe Day (IPD)

- Thursday 15th April 2021

Posted On: 12/04/2021

IPD is a day to bring the global Pompe community together in a great show of strength. It is an opportunity to see how other people are living with Pompe and understand some of their challenges. It is also a day to raise awareness of this incredibly rare condition.

We would encourage you to submit a paragraph or two about yourself, together with a photograph to illustrate your location in the world. That might be a local landmark, somewhere of special significance to you, or simply your back garden.

Full instructions on how to participate in this global event are given on the IPA Website, but we have copied them below for convenience.

The IPA believes that raising awareness of Pompe Disease is key, and this year’s theme has been selected as “Pompe Around the World”

How YOU can Participate:

  1. Our goal with Pompe Around the World is to show what it is like to live, cope, or how you are connected with Pompe all over the world — that no matter where we live, we are all connected. Please take a picture that represents where you live and share a short statement about your life.
  2. Send an email to
  • The subject of your email will become the title of your post
  • The body of the email will be the post itself, where you can share your short statement
  • To include your photo in your post, you can simply attach the image to your email (size max. 10 MB).
  • Please include your name, country and age in the email, so we can show the world how strong our Community is.