eNewsletter of the Pompe Support Network

Posted On: 08/05/2020

The PompePost newsletter is designed for reading online as it often makes use of hyperlinks, rather than unnecessarily reproducing content. Please contact us if you prefer to receive a printed copy (sorry, UK only).

2019 eNewsletters

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December 2019 PompePost - Contents: Charity Commission recognition - Saved by the Pompe Model - Advent of the Pompe Model - Business news - Clinical trials - Neonatal screening for Pompe disease - Fundraising