eNewsletter of the Pompe Support Network

Posted On: 08/05/2020 Recently Posted!

The PompePost newsletter is designed for reading online as it often makes use of hyperlinks, rather than unnecessarily reproducing content. Please contact us if you prefer to receive a printed copy (sorry, UK only).

2019 eNewsletters

Click on the highlighted link to download a newsletter

December 2019 PompePost - Contents: Charity Commission recognition - Saved by the Pompe Model - Advent of the Pompe Model - Business news - Clinical trials - Neonatal screening for Pompe disease - Fundraising