This week Allan Muir represented the Pompe community at a meeting in Ferrara, Italy.
Allan is a member of the Screen4Care Patient Advisory Board (PAB). Screen4Care is an EU project to accelerate diagnosis of rare diseases and has a budget of 25 million euros over 5 years.
The meeting discussed the excellent progress made so far and the next steps which will require much closer collaboration with patient groups. For example, Pompe Disease will be first to pilot a symptom-checking algorithm for an App that is being developed as part of the project.
We will be working very closely with that team and update you on any developments.
