Zoom into Pompe - Series of online meetings

Zoom into Pompe - Series of online meetings

ZiP 004: Dietary and Nutrition advice for Pompe disease

Posted On: 23/07/2020 Recently Posted!

Please join our next ZiP meeting on 30th July at 2pm (BST)

ZiP 004: Dietary and Nutrition advice for Pompe disease

Thursday 30th July 2020 @ 2pm (UK Time)

With guest speaker, Dr Gisela Wilcox, Consultant in Metabolic Medicine, The Mark Holland Metabolic Unit, Salford Royal Foundation NHS Trust.

Dr Wilcox manages Pompe adults at the Highly Specialised Service for LSDs at Salford Royal, she is a Clinical Ambassador for Medics 4 Rare Diseases, and an Honorary Senior Lecturer at the University of Manchester.

Dr Wilcox will discuss dietary measures to reach an ideal body-weight and maintain healthy muscles.

After her talk there will be an opportunity to ask any questions you have about nutrition which might include how to build a healthy immune system as protection from a second wave of COVID-19.

Following the Q&A there will be free time to chat amongst ourselves on any topic that arises.

To Join the Zoom into Pompe Meeting, click on this link:

https://us02web.zoom.us/j/82665801009?pwd=MmRobUF3OTU4b3hib0MwQ1BCOUd0dz09

ID: 826 6580 1009

Passcode: 336391

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ZiP 005: Homecare – reducing dependency on nursing services

Saturday 29th August @ 11am (UK Time)

This will be an opportunity for the Pompe community to discuss past experiences of homecare and home infusions, especially during the COVID-19 restrictions.

Individuals will be invited to discuss their experiences of being totally or partially independent of nursing care during home infusions. So please join to share your experiences or to see if self-infusion might work for you.

To Join the Zoom into Pompe Meeting, click on this link:

https://us02web.zoom.us/j/82665801009?pwd=MmRobUF3OTU4b3hib0MwQ1BCOUd0dz09

ID: 879 4091 4165

Passcode: 918901