"Leo and the Floppy Sloth" was written and illustrated by Kara Price. It is the story of Leo's life and his travelling dreams with Slothy.
"This book was inspired by my son, Leo, who has Pompe disease, and still to this day fights like a warrior. He is my inspiration for this book and life. I love you Leo, keep on fighting". Kara Price.
The publication was fully funded by the Pompe Support Network. Copies will be sent free of charge to UK families with a Pompe child. Please subscribe to Pompe Support Network and contact us directly for your copy.
If you would like to purchase a copy of the book, we would suggest a donation of £10 (GBP) plus postage to cover our costs. We can post oversees.
Postage costs to UK: £2.50 GBP = Total price £12.50 GBP
Postage costs to Europe: £6.00 GBP = Total price £16.00
Postage to the Rest of the world: £10.00 GBP = Total price £20.00
Please contact us at hello@pompe.uk to receive your copy by post.
