Pompe quality of life: Future Research Priorities

Pompe quality of life: Future Research Priorities

Posted On: 08/07/2021 Recently Posted!

To help Pompe Support Network understand your research priorities we've created a simple form which we'd appreciate your response.

Your responses will help us to focus our support on research that will bring most benefit to the Pompe community, even if it may require considerable effort and resources to achieve it.

Please respond according to what would bring improvement to your quality of life, rather than what you think might be possible.

Please click the link below to access the form. It should only take a few minutes to complete.

Pompe quality of life: Future Research Priorities