Mental Wellbeing Support

Mental Wellbeing Support

Posted On: 10/02/2021

Mental Wellbeing is so important for us all, especially during these times, so if you need urgent support there are lots of places you can go for help. This section is here to help you find outlets who can offer you the support you need.

Remember: It's ok not be ok.


We're listening to you...

WordCloud from responses to the Pompe Experiences Survey 2020
WordCloud of negative responses to the Pompe Experiences Survey 2020

Mental Wellbeing Survey

Earlier this year we reported on a 2020 survey of the UK Pompe community. From that we learned that many people are struggling and may require additional support. Recently we have received small grants from the National Lottery to provide extra help to support the resilience of the UK Pompe community, and so we would like to explore the best way of providing that support.

To answer the question of how best to offer support, we have created a 4-question survey requiring only Yes or No answers.

Please click on the link below to complete the survey:

Mental wellbeing survey

WordCloud from responses to the Pompe Experiences Survey 2020
WordCloud of positive responses to the Pompe Experiences Survey 2020

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MEE TOO App

MeeToo smartphone app makes it easy to talk about difficult things.

It’s free, safe and anonymous.

The MeeToo smartphone app allows you to talk anonymously about difficult things with other people of a similar age or experience. You can get help with your problems or use your experiences to help others. The app is a safe space where all posts and replies are checked before going live so there is no harassment, bullying or grooming.

Click the image to be taken to the MeeToo website to find out more.

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