We have a small fund that can be used to cover incidental costs in certain cases of hardship, for example:
- Pompe Family or individuals displaced by warfare or other political unrest in their home country.
- Parents need to visit hospitalised child daily for several months after confirmed diagnosis of Pompe disease.
- Family or individuals with Pompe and isolating due to infection.
- Other unforeseen circumstances that require help to maintain a normal Pompe treatment schedule.
Please note:
- Our Hardship Fund will only allow us to provide a maximum of £200 to individuals or families requiring support.
- We have a maximum of £1500 available each year.
- Grants are available to individuals or families throughout the world
- We will require a supporting letter from a healthcare professional or patient support organisation
Funding requests should be made to the Pompe Support Network using the contact details below:
Email: hello@pompe.uk
Post: Pompe Support Network, 43a North Lane, Buriton, Petersfield, Hampshire, GU31 5RS, UK