Pompe Hardship grants

Pompe Hardship grants

Posted On: 22/07/2022

Pompe Support Network is aware of the financial burden that can cause short-term hardship for individuals and families, living with Pompe disease, who are already struggling for no fault of their own.

We have a small fund that can be used to cover incidental costs in certain cases of hardship, for example:

  • Pompe Family or individuals displaced by warfare or other political unrest in their home country.
  • Parents need to visit hospitalised child daily for several months after confirmed diagnosis of Pompe disease.
  • Family or individuals with Pompe and isolating due to infection.
  • Other unforeseen circumstances that require help to maintain a normal Pompe treatment schedule.

Please note:

  • Our Hardship Fund will only allow us to provide a maximum of £200 to individuals or families requiring support.
  • We have a maximum of £1500 available each year.
  • Grants are available to individuals or families throughout the world
  • We will require a supporting letter from a healthcare professional or patient support organisation

Funding requests should be made to the Pompe Support Network using the contact details below:

Email: hello@pompe.uk

Post: Pompe Support Network, 43a North Lane, Buriton, Petersfield, Hampshire, GU31 5RS, UK