With over 20 years experience within the corporate environment, Alex is already enjoying working alongside the community, having been involved in the 'Pompe & Cicumstance project', and raising the profile of the Pompe Support Network.
Alex Jones
Communications Manager
Posted On: 04/06/2020
Alex has been involved with the Pompe community for over 2 years and having a close friend who was diagnosed with Pompe disease from a young age, Alex understands the challenges the disease poses and is keen to be involved in developing the Pompe community and raising awareness of the disease.