Alex Jones

Alex Jones

Communications Officer

Posted On: 04/06/2020

Alex is new to the Pompe community but having a close friend who was diagnosed with Pompe disease from a young age, Alex understands the challenges the disease poses and is keen to be involved in developing the Pompe community and raising awareness of the disease.

With over 20 years experience within the corporate environment, Alex is looking forward to working alongside the community and raising the profile of Pompe Support Network.