Alex Jones

Alex Jones

Communications Manager

Posted On: 04/06/2020

Alex is new to the Pompe community but having a close friend who was diagnosed with Pompe disease from a young age, Alex understands the challenges the disease poses and is keen to be involved in developing the Pompe community and raising awareness of the disease.

With over 20 years experience within the corporate environment, Alex is already enjoying working alongside the community, having been involved in the 'Pompe & Cicumstance project', and raising the profile of the Pompe Support Network.

Alex Jones - Communications Manager