Earlier this year we reported on a 2020 survey
of the UK Pompe community. From that we learned that many people are
struggling and may require additional support. Recently we have received small
grants from the National Lottery to provide extra help to support the
resilience of the UK Pompe community, and so we would like to explore the best
way of providing that support.
To answer the question of how best to offer support, we have created a
4-question survey requiring only Yes or No answers.
Please click on the link below to complete the survey:
