Video Library

Video Library

A growing collection of video presentations from our "Zoom into Pompe" (ZiP) online meetings and other sources. Please subscribe to our YouTube channel to find them easily:

Pompe Support Network YouTube Channel

  • ZiP 003: Patients Introduction to Respiratory Muscle Training for Late Onset Pompe Disease

    Posted On: 13/05/2020

    A 30 minute presentation by Dr Harrison Jones discussing the benefits of Respiratory Muscle Training for LOPD; suggesting that with supported training, significant improvements to the respiratory response are possible.

  • ZiP 002: Physical Wellbeing

    Posted On: 13/05/2020

    Lecturer in physiotherapy, Steve Dando, provides 35 minutes of advice on safe exercises for people living with Pompe disease. Steve has extensive experience of working with the UK Pompe community as a neuromuscular physiotherapist.