To quote our trustee, Dr Kevin O’Donnell:
Everyone in the Pompe community knows that the development of an enzyme replacement therapy was a huge step forward for people living with the disease. However, this wonderful collection demonstrates that we don’t need to rely exclusively on science and medicine to improve our lives.
Every gem in this life-affirming collection is an example of someone winning at life. In these somewhat trying times, it is a balm to the spirit to read of the many and varied ways that people have found to be happy.
I hope that you too will find the happiness in these pages infectious and, who knows, find something that you are inspired to try for yourself.
The book was funded by a grant from the UK National Lottery and copies of the book were sent to each Pompe Support Network UK subscriber.
If you would like a copy of the book posted to you we would suggest a donation of £10 (GBP) plus postage to cover our costs. We can post oversees!
Postage costs to UK: £2.50 GBP = Total price £12.50 GBP
Postage costs to Europe: £6.00 GBP = Total price £16.00
Postage to the Rest of the world: £10.00 GBP = Total price £20.00
We would like as many of the community to have a copy of the book so please contact us - hello@pompe.uk - to receive your copy by post.
