Kevin Annesley

Kevin Annesley


Posted On: 02/03/2022

Kevin is an LOPD patient, self-diagnosed in 2008 after five years of being mis-diagnosed. He has been on ERT since 2008 and participated in several trials.

Kevin works as a full time consultant design engineer. Researching alternative ways to slow the progression of Pompe, usually putting his own body on the line. Kevin is also a community advisory board (CAB) member for the IPA.

Kevin says "Looking back the first symptoms effected my ability to speak even when I started school. I hope with my experiences I can give add a balanced voice to the PSN leadership team"