Barbara Muir

Barbara Muir

Trustee

Posted On: 08/05/2020 Recently Posted!

In December 1989 Barbara gave birth to a boy who was found to have poor muscle tone. It took two years to receive the diagnosis of Pompe disease after many desperate and fraught visits to the local paediatric service.

Since that time, Barbara has been a compassionate and supportive member of the UK Pompe community; always happy to listen and provide a shoulder to cry on.

Barbara is widely recognised for her frequent fundraising activities in her local village community.