Pompe News
Many people receive the plethora of global news items through Google Alerts, Facebook and other Pompe websites, for example "Pompe Disease News". Posts here will be restricted to significant developments within the Pompe community, such as reports from patient meetings.
As we are a community website, please send your news to us and we'll check if it's suitable to post.
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What the development of Myozyme meant for patients, their families, and their community
Posted On: 07/04/2022
Head over to the RESEARCH section to read the story of the UK Pompe community’s involvement in the development of enzyme replacement therapy for Pompe disease.
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