COVID-19 Webinar

COVID-19 Webinar

Posted On: 08/05/2020 Recently Posted!

It is increasingly likely that any family living with someone with Pompe disease will be asked to self-isolate. The webinar above will be an opportunity to hear answers to any questions you have concerning:
  • Care
  • Treatment (ERT)
  • Drug trials
  • Homecare service
  • Hospital visits
  • Vaccinations
  • Or anything else that concerns you during this difficult period.

Questions should be sent in advance of the meeting to arrive before noon tomorrow (Wednesday 18 March); they should be sent by email to: hello@pompe.uk.