COVID-19 Webinar

Posted On: 08/05/2020

Categories:
COVID-19
Webinar

It is increasingly likely that any family living with someone with Pompe disease will be asked to self-isolate. The webinar above will be an opportunity to hear answers to any questions you have concerning:

Care
Treatment (ERT)
Drug trials
Homecare service
Hospital visits
Vaccinations
Or anything else that concerns you during this difficult period.

Questions should be sent in advance of the meeting to arrive before noon tomorrow (Wednesday 18 March); they should be sent by email to: hello@pompe.uk.