Before his diagnosis, he enjoyed a varied career with the British Police. He retired from the Police in 2018 as a Detective Superintendent. He later spent several years as Security Director in the private sector and continues to undertake occasional consultancy work.
Cycling has always been a major part of his life. After leaving the Police, he travelled from Colombia to Patagonia on a fully laden touring bicycle, covering around 10,000 km. He is fortunate to still enjoy cycle touring, although he now plans his routes more carefully around the effects of Pompe disease and his infusion schedule.
Although his diagnosis came as a shock, he has been greatly encouraged by the support, knowledge and sense of community within the Pompe community. The Pompe Support Network has been an invaluable source of information and connection, and he feels honoured to have the opportunity to contribute as a Trustee.