"Leo and the Floppy Sloth's Party and Friends" was written and illustrated by Kara Price. It is the story of Leo's life and his treatment with Slothy.
"These stories are for my son Leo who has infantile Pompe disease, a rare genetic condition. I have written these stories to help raise awareness and funding for research into the condition. In this book we explore Pompe disease and how it aff ects people differently". Kara Price.
Ordering your copy
The publication was fully funded by the Pompe Support Network. Copies will be sent free of charge to UK families with a Pompe child. Please subscribe to Pompe Support Network and contact us directly for your copy.
If you would like a copy of the book posted to you, please use the form below which includes postal charges. We can post oversees!
There is an option with no delivery charge if you are picking up the book from us directly
Postage costs to UK: £2.50 GBP = Total price £12.50 GBP
Postage costs to Europe: £6.00 GBP = Total price £16.00
Postage to the Rest of the world: £10.00 GBP = Total price £20.00