Dr Kevin O'Donnell

Dr Kevin O'Donnell

Trustee

Posted On: 08/05/2020 Recently Posted!

Kevin has been committed to the Pompe community for over 25 years. He believes that the time is right for the creation of Pompe Support Network to consolidate the gains made in that time and to ensure that the UK Pompe community continues to progress and to share in international developments.

Kevin is a Molecular biologist who is currently studying for a Masters in Counselling at University of Edinburgh. He is a former trustee and Pompe representative of AGSD-UK and was a founder member of the International Pompe Association ( IPA); he remains a valued advisor to the association.

Kevin is the author of the online blog “Pompe Disease – The Real Story

Published Papers: "The role of patient advocacy organizations in shaping medical research: the Pompe model". Vol 7, No 13 (July 2019): Annals of Translational Medicine, Authors: Tiffany House, Kevin O’Donnell, Raymond Saich, Fabio Di Pietro, Ria Broekgaarden, Allan Muir, Thomas Schaller.