Kevin is a Molecular biologist who is currently studying for a Masters in Counselling at University of Edinburgh. He is a former trustee and Pompe representative of AGSD-UK and was a founder member of the International Pompe Association ( IPA); he remains a valued advisor to the association.
Kevin is the author of the online blog “Pompe Disease – The Real Story”
Published Papers: "The role of patient advocacy organizations in shaping medical research: the Pompe model". Vol 7, No 13 (July 2019): Annals of Translational Medicine, Authors: Tiffany House, Kevin O’Donnell, Raymond Saich, Fabio Di Pietro, Ria Broekgaarden, Allan Muir, Thomas Schaller.