Amicus announced a new initiative to support the Pompe community. They provided this announcement:
Amicus Ignite welcomes applications from across the Pompe community, including healthcare institutions, patient advocacy organisations, academic institutions and charitable organisations.
“Persistent unmet needs in the Pompe health and care journey means that this disease continues to have a devastating impact on the quality of life of patients and their caregivers,” said Hülya Apaydin, CEO, Pompe Support Network and Board Member, International Pompe Association. “Programmes like Amicus Ignite can enable and foster innovative projects that bring meaningful improvements to the community of people affected by Pompe.”
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