Pompe Patient Appointment Sheet

The appointment sheets which help patients and caregivers better prepare for their appointments can be downloaded and printed or filled out as a pdf. They can be used in conjunction with the Guidelines which can also be downloaded below.

Download the Appointment Sheets:

Late Onset Pompe Disease Patient Appointment Sheet

Infantile Onset Pompe Disease Patient Appointment Sheet

The Patient Guidelines can also be downloaded below, and more information about them can be found here.

Download the Patient Guidelines:

Late Onset Pompe Disease Patient Treatment Guideline

Infantile Onset Pompe Disease Patient Treatment Guideline

Additional up-to-date information about the available treatment options and research about their effectiveness is provided in this document which is designed to be an "insert" for the printed Guideline Booklets.

Download the insert here:

Insert for up-to-date Pompe Treatments

Pompe Support Network is happy to provide printed copies for anyone who does not have a printer, or for organisations who would like to supply the guidelines for patients or caregivers. Contact us at hello@pompe.uk to request them.

We thank industry partners, Sanofi UK and Amicus Therapeutics for providing funding to develop and print these appointment sheets in conjunction with the Patient Guidelines.