Since then Hulya has worked in various positions: in media as a producer, as a film festival organiser and for the past 8 years as a research manager and a senior project manager for research companies specialising in healthcare.
Hulya first heard about Pompe when she met her partner, Jeff, 11 years ago, and learned about his condition. Since Jeff moved to the UK 7 years ago, Hulya has been his main carer.
Hulya is excited to be part of Pompe Support Network as a trustee to contribute what she can from her vast experience, knowledge and skills.