Pompe Patient Treatment Guidelines Posted On: 28/01/2026 Pompe Patient Guidelines created by Pompe Support Network to help inform patients on current treatment options and to enable patients to be part of shared-decision making with their clinicians. Read More...
Pompe Patient Appointment Sheet Posted On: 31/07/2025 Patient Appointment Sheets were created to go with the Pompe Patient Guidelines created by Pompe Support Network to help inform patients on current treatment options and to enable patients to be part of shared-decision making with their clinicians. Read More...
Leo and the Floppy Sloth's Party and Friends Posted On: 21/07/2025 Children's book by Kara Price A second charming children's book written and illustrated by Kara Price and inspired by her son Leo. Read More...
Pompe and Me Posted On: 04/10/2024 Children's book by Julie Garfield and Allyson Lock A great children's book written by members of the Pompe Community Julie Garfield and Allyson Lock and illustrated by Ben Lock. Read More...
This Little Thing I Do Posted On: 18/07/2023 Our community publication, 'This Little Thing I Do', is now available - get your copy NOW! Read More...
Leo and the Floppy Sloth Posted On: 13/11/2023 Children's book by Kara Price A charming children's book written and illustrated by Kara Price and inspired by her son Leo. Read More...
