There will be three of the Pompe Support Network leadership team in attendance: Kevin O'Donnell is an invited speaker, Allan Muir will be joining as IPA vice-chair, and Wayne Belfitt will be joining as a member of the IPA Community Advisory Board. The EURORDIS-inspired CAB was created by the IPA to advise industry and other professional groups; giving first-hand patient experience. The CAB meets for the first time on the days following the AMDA conference and will include three members from the UK.
We're all greatly looking forward to meeting up and meeting with the many other members of the International Pompe community.