Conservative peer, Baroness Fraser of Craigmaddie, has said that for many neurological conditions, access is falling short of recommendations made by the National Institute for Health and Care Excellence (NICE).
The debate followed the publication last week of the Neurological Alliance’s 'My Neuro Survey' of more than 8,500 people in the UK living with a neurological condition. The survey highlighted severe delays for treatment and support for those with neuro conditions.
Liberal Democrat, Baroness Thomas of Winchester lives with Pompe disease for which specialist neuromuscular physiotherapy can help with the management of the condition.
She highlighted a report by Muscular Dystrophy UK called Shining a Light:
"Muscular Dystrophy UK’s findings indicated that delayed access to muscle clinics, physiotherapy and hydrotherapy would result in irreversible muscle weakness and muscle loss."
Demand for rehabilitation services is increasing across the UK, with only 40 per cent of people with neurological conditions receive neuro rehabilitation.
Click this link for the full report:
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Click below to watch Baroness Thomas of Winchester's Film from our PompAbility: The Film Series
Episode 5, Celia | Pompe Support Network
