'Life of Pompe' survey - Results

'Life of Pompe' survey - Results

Posted On: 01/04/2021 Recently Posted!

Thank you to everyone who completed our in-house survey - 'Life of Pompe' - we received a host of very interesting responses. We are using these results to ensure our future reports and articles feature the issues and information which matter to each of our members.

A selection of the results are shown below:

"I have Pompe, Pompe doesn't have me"