LSD Collaborative Community Survey 2022
Clinical and Social Care Services
Below is a link to an important survey to help us understand the quality care that you experience through your specialist hospital clinic, homecare, and other social care services.
The survey is designed by the LSD Collaborative; a group of 11 charities supporting lysosomal disorders. It is fully anonymised, so your identity will not be known by anyone receiving your response.
The previous LSD Collaborative Community Survey in 2020 had an excellent response, and the LSD collaborative were able to use the anonymised data to argue for improvements to the NHS care services enjoyed by our small community.
Please support your rare disease community by completing the survey using the web-link provided; it should take less than 20 minutes to complete.
If you require help in completing the survey; please contact the patient organisation that supports your condition. Your specialist medical team is extremely busy at this time, but they may also be able to help.
Thank you on behalf of the LSD Collaborative, and the LSD Community.
CLICK HERE TO ACCESS THE SURVEY
