Vicky continuously badgered her GP and many healthcare professionals to eventually have a diagnosis of Pompe in March 2026 and is now undergoing ERT at home. Prior to her diagnosis, she did Reformer Pilates for two years to improve strength, muscle tone and gait pattern. She continues to work with her Pilates instructor and physiotherapist at The Royal Free for her wellbeing.
Vicky Brooks
Volunteer
Posted On: 24/08/2026 Recently Posted!
Vicky lives in Kent with her husband Ian and her corgi Florence. She had noticeable weakness in her 30s with poor muscle tone, however she danced her way through it with Ballroom and Latin dancing. She is lucky to work from home as Practice Manager for two surgeons after a career in London in Banking and Healthcare.