Would you like to help research into Pompe disease?
Study title: An AAV8 Neutralizing Antibody Seroprevalence Study in Subjects with Late Onset Pompe Disease
Location: The John Walton Muscular Dystrophy Research Centre, International Centre for Life, Newcastle upon Tyne
If you have Late Onset Pompe disease and are not already taking part in a clinical trial for Pompe, a research team at a Newcastle study would be interested to take a blood sample from you to help them understand how antibodies in patients may affect a particular gene therapy.
This study will involve one visit to the Centre for Life in Newcastle to meet the medical staff. They will give you an explanation of the study and you’ll have an opportunity to ask any questions prior to giving your consent and having a blood sample taken.
You will receive reimbursement for reasonable travel, accommodation and food expenses.
If you would like to get in touch with the Newcastle team the contact details as follows:
Ruth Wake
Neuromuscular Research Nurse
The John Walton Muscular Dystrophy Research Centre
International Centre for Life
Newcastle upon Tyne
NE1 3BZ
T 0191 241 8865