Diary Of Events

ZiP 008: Opening Up

An online meeting to discuss how we all feel about life after Covid-19:

Start Date: 08th May - 11am

As we take steps along the government’s Roadmap to ease restrictions, you’ll have your own ideas on how comfortable you feel about opening up, so please bring your hopes or concerns to our next Zoom into Pompe (ZiP) meeting and share them with others in the Pompe community.

Read More...

ZiP 007: International Pompe Day meeting

Start Date: 15th April - 10am

End Date: 15th April - 12pm

We will be hosting an informal Zoom meeting on International Pompe Day, using the opportunity to discuss all things Pompe. It is an opportunity for you to advise us what you require from us, so ensuring we have the right priorities to support you and the Pompe community.

Read More...

Zoom into Pompe - ZiP005: Homecare Infusions during a pandemic

Start Date: 29th August - 11am

*The meeting has taken place and was very insightful and informative for all involved. Please follow this link to read the Review of the meeting - ZiP005: Review

Read More...